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AJA

Utilization of the Cancer Data Platform of the French National Cancer Institute (INCa) for epidemiological assistance
of childhood, adolescent, and young adult cancers

The main objective is to provide insights into the epidemiology of cancers in children, adolescents, and young adults (AYAs) using the Cancer Data Platform of the French National Cancer Institute (INCa), particularly to describe the distribution of cases by types over the period 2011-2019 as well as the healthcare pathways of AYAs with cancer across the entire rural and urban territory.

The secondary objective is to assist the National Registry of Childhood Cancers (RNCE) in improving the completeness of cases in the 15-17 age group by identifying unknown cases from the INCa Cancer Data Platform (PDC).

Patients concerned: all patients in the Cancer Data Platform (PDC) who were diagnosed with cancer for the first time between the ages of 15 and 24 in the period 2010-2019, population born between 1986 and 2004.

Data used:

Data contained in the INCa Cancer Data Platform: gender, month and year of birth, municipality of residence (postcode), date of care, care locations, cancer diagnosis coded according to the International Classification of Diseases (ICD-10), month and year of potential death.

Data collected by the RNCE: gender, month and year of birth, municipality of residence at diagnosis, date of cancer diagnosis, type of cancer, nature and date of first treatment, nature of treatment, treatment facility.

Method: A matching between the data from the RNCE and the PDC is carried out firstly to identify and eliminate prevalent cases that had a first cancer before 2010 and secondly, to evaluate the quality of data collection for 15-17 year olds in the RNCE since 2011.