{"id":4424,"date":"2023-10-23T12:13:55","date_gmt":"2023-10-23T12:13:55","guid":{"rendered":"http:\/\/rnce.inserm.fr\/about-us\/"},"modified":"2024-05-22T13:52:09","modified_gmt":"2024-05-22T13:52:09","slug":"about-us","status":"publish","type":"page","link":"https:\/\/rnce.inserm.fr\/en\/about-us\/","title":{"rendered":"About us"},"content":{"rendered":"\t\t<div data-elementor-type=\"wp-page\" data-elementor-id=\"4424\" class=\"elementor elementor-4424 elementor-45\" data-elementor-post-type=\"page\">\n\t\t\t\t<div class=\"elementor-element elementor-element-331df361 e-con-full e-flex e-con e-parent\" data-id=\"331df361\" data-element_type=\"container\">\n\t\t<div class=\"elementor-element elementor-element-32f3cea e-con-full e-flex e-con e-child\" data-id=\"32f3cea\" data-element_type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-f311462 elementor-widget elementor-widget-text-editor\" data-id=\"f311462\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<style>\/*! elementor - v3.23.0 - 05-08-2024 *\/\n.elementor-widget-text-editor.elementor-drop-cap-view-stacked .elementor-drop-cap{background-color:#69727d;color:#fff}.elementor-widget-text-editor.elementor-drop-cap-view-framed .elementor-drop-cap{color:#69727d;border:3px solid;background-color:transparent}.elementor-widget-text-editor:not(.elementor-drop-cap-view-default) .elementor-drop-cap{margin-top:8px}.elementor-widget-text-editor:not(.elementor-drop-cap-view-default) .elementor-drop-cap-letter{width:1em;height:1em}.elementor-widget-text-editor .elementor-drop-cap{float:left;text-align:center;line-height:1;font-size:50px}.elementor-widget-text-editor .elementor-drop-cap-letter{display:inline-block}<\/style>\t\t\t\t<p>The registry includes all children newly diagnosed with cancer, younger than 18 years (since 2011), and whose usual residence is in mainland France or overseas departments at the time of diagnosis. RNCE made up of: The French National Registry of Childhood Haematological Malignancies, which records all diagnoses of haematological malignancies since 1990 and The French National Registry of Childhood Solid Tumours, which records all solid tumours cases since 2000. Until 2011, RNCE covered mainland France&#8217;s under 15 population. Since 2011, it expanded to the overseas territories and teenagers under 18 years old.<\/p>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-bed596b e-con-full e-flex e-con e-child\" data-id=\"bed596b\" data-element_type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-4d31c9d elementor-align-left elementor-widget__width-auto elementor-widget elementor-widget-button\" data-id=\"4d31c9d\" data-element_type=\"widget\" data-widget_type=\"button.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<div class=\"elementor-button-wrapper\">\n\t\t\t<a class=\"elementor-button elementor-button-link elementor-size-sm\" href=\"https:\/\/rnce.inserm.fr\/wp-content\/uploads\/2024\/03\/CCOP-RNCE_NoteInformation_20231218-1.pdf\" target=\"_blank\">\n\t\t\t\t\t\t<span class=\"elementor-button-content-wrapper\">\n\t\t\t\t\t\t<span class=\"elementor-button-icon\">\n\t\t\t\t<i aria-hidden=\"true\" class=\"fas fa-download\"><\/i>\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t<span class=\"elementor-button-text\">Parental Information Note<\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-5f3d227 elementor-align-left elementor-widget__width-initial elementor-widget elementor-widget-button\" data-id=\"5f3d227\" data-element_type=\"widget\" data-widget_type=\"button.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<div class=\"elementor-button-wrapper\">\n\t\t\t<a class=\"elementor-button elementor-button-link elementor-size-sm\" href=\"https:\/\/rnce.inserm.fr\/en\/rnce_ccop_information_majeurs_20220314-2\/\" target=\"_blank\">\n\t\t\t\t\t\t<span class=\"elementor-button-content-wrapper\">\n\t\t\t\t\t\t<span class=\"elementor-button-icon\">\n\t\t\t\t<i aria-hidden=\"true\" class=\"fas fa-download\"><\/i>\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t<span class=\"elementor-button-text\">Information Note for Majority<\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div data-dce-background-color=\"#F5F5F5\" class=\"elementor-element elementor-element-42aa679 e-flex e-con-boxed e-con e-parent\" data-id=\"42aa679\" data-element_type=\"container\" data-settings=\"{&quot;background_background&quot;:&quot;gradient&quot;}\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t<div class=\"elementor-element elementor-element-b09a08b e-con-full e-flex e-con e-child\" data-id=\"b09a08b\" data-element_type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-e55fefd elementor-widget elementor-widget-text-editor\" data-id=\"e55fefd\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<h3 style=\"color: #000000;\">Definitions and objectives<\/h3>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-ea64a55 elementor-widget elementor-widget-text-editor\" data-id=\"ea64a55\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<p>A registry is defined by the French Registry Evaluation Committee (CER), as a structure carrying out continuous and exhaustive collection of personal data related to one or several health events, within a geographically-defined population, for research purposes and public health surveillance, conducted by skilled team.<\/p>\n<p>The identification and documentation of cases are carried out by the network of clinical research associates of the RNCE. They collect data related to the diagnosis, management, and progression of the disease. They are supervised by coordinators who ensure the quality of the data and code the diagnoses according to international classifications. Additional data quality controls are conducted by the registry&#8217;s data managers.<\/p>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-a470588 e-con-full e-flex e-con e-child\" data-id=\"a470588\" data-element_type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-77b9b34 elementor-widget elementor-widget-text-editor\" data-id=\"77b9b34\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<h3>RNCE&#8217;s mission<\/h3>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-f4fe1fc elementor-widget elementor-widget-text-editor\" data-id=\"f4fe1fc\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<p>RNCE supplies French survival and incidence figures against cancers and some benign pediatric tumours. It supports the surveillance missions of <a href=\"https:\/\/www.santepubliquefrance.fr\/recherche\/#search=cancers%20p%C3%A9diatriques\" target=\"_blank\" rel=\"noreferrer noopener\">Sant\u00e9 publique France<\/a> and <a href=\"https:\/\/www.e-cancer.fr\/Expertises-et-publications\/Les-donnees-sur-les-cancers\/Les-registres-des-cancers\" target=\"_blank\" rel=\"noreferrer noopener\">INCa <\/a> and serves as a basis for research conducted by the Epidemiology of Childhood and Adolescent Cancers (EPICEA) team and its collaborators. It is also the foundation of the Childhood Cancer Observational Platform (CCOP).<\/p>\n<h3> <\/h3>\n<p>The RNCE is part of the <a href=\"https:\/\/lesdonnees.e-cancer.fr\/Informations\/Sources\/SOURCE-Reseau-FRANCIM\" target=\"_blank\" rel=\"noreferrer noopener\">Francim network<\/a>, the <a href=\"https:\/\/www.encr.eu\/\" target=\"_blank\" rel=\"noreferrer noopener\">ENCR<\/a>, and the <a href=\"http:\/\/www.iacr.com.fr\/\" target=\"_blank\" rel=\"noreferrer noopener\">IACR<\/a>.<\/p>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-9ebdce1 e-flex e-con-boxed e-con e-parent\" data-id=\"9ebdce1\" data-element_type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t<div class=\"elementor-element elementor-element-4c779f05 elementor-widget elementor-widget-text-editor\" data-id=\"4c779f05\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\n<h3>Data security and privacy<\/h3>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-8ee1b88 e-con-full e-flex e-con e-child\" data-id=\"8ee1b88\" data-element_type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-397b85f elementor-widget__width-initial dce_masking-none elementor-widget elementor-widget-image\" data-id=\"397b85f\" data-element_type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<style>\/*! elementor - v3.23.0 - 05-08-2024 *\/\n.elementor-widget-image{text-align:center}.elementor-widget-image a{display:inline-block}.elementor-widget-image a img[src$=\".svg\"]{width:48px}.elementor-widget-image img{vertical-align:middle;display:inline-block}<\/style>\t\t\t\t\t\t\t\t\t\t<img decoding=\"async\" src=\"https:\/\/rnce.inserm.fr\/wp-content\/uploads\/2024\/01\/cnil-logo_rvb.jpg\" title=\"cnil-logo_rvb\" alt=\"cnil-logo_rvb\" loading=\"lazy\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-45bc23c elementor-widget__width-initial elementor-widget elementor-widget-text-editor\" data-id=\"45bc23c\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<p>Data computerization, data security, validation process, together with database cross-checking, ensure the completeness and quality of the RNCE national data (<a href=\"https:\/\/www.cnil.eng\/\" target=\"_blank\" rel=\"noreferrer noopener\">French Data Protection Authority CNIL<\/a> <a href=\"https:\/\/www.legifrance.gouv.fr\/cnil\/id\/CNILTEXT000027475990?init=true&amp;page=1&amp;query=998198&amp;searchField=ALL&amp;tab_selection=all\" target=\"_blank\" rel=\"noreferrer noopener\">authorisation \uff03998198<\/a> ).<\/p>\n<p style=\"text-align: left;\">In this context and in accordance with the law of August 6, 2004 (relating to the protection of individuals with regard to the processing of personal data) and amending the &#8220;Data Protection&#8221; law No. 78-17 of January 6, 1978 (relating to data processing, files, and freedoms), unless the parents object, information about the child&#8217;s illness is transmitted to the National Registry of Malignant Hematologic Diseases of Children and to the National Registry of Solid Tumors of Children. The right to information, access to the file, and rectification of information can be exercised with the responsible authorities of the Registries.<\/p>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"<p>The registry includes all children newly diagnosed with cancer, younger than 18 years (since 2011), and whose usual residence is in mainland France or overseas departments at the time of diagnosis. RNCE made up of: The French National Registry of Childhood Haematological Malignancies, which records all diagnoses of haematological malignancies since 1990 and The French [&hellip;]<\/p>\n","protected":false},"author":2,"featured_media":5291,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"footnotes":"","_links_to":"","_links_to_target":""},"class_list":["post-4424","page","type-page","status-publish","has-post-thumbnail","hentry"],"acf":[],"_links":{"self":[{"href":"https:\/\/rnce.inserm.fr\/en\/wp-json\/wp\/v2\/pages\/4424","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/rnce.inserm.fr\/en\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/rnce.inserm.fr\/en\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/rnce.inserm.fr\/en\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/rnce.inserm.fr\/en\/wp-json\/wp\/v2\/comments?post=4424"}],"version-history":[{"count":5,"href":"https:\/\/rnce.inserm.fr\/en\/wp-json\/wp\/v2\/pages\/4424\/revisions"}],"predecessor-version":[{"id":5157,"href":"https:\/\/rnce.inserm.fr\/en\/wp-json\/wp\/v2\/pages\/4424\/revisions\/5157"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/rnce.inserm.fr\/en\/wp-json\/wp\/v2\/media\/5291"}],"wp:attachment":[{"href":"https:\/\/rnce.inserm.fr\/en\/wp-json\/wp\/v2\/media?parent=4424"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}