Data quality and regulatory framework - RNCE

Registre National des Cancers de l’Enfant

Registries Evaluation Committee (CER)

The certification of a cancer registry by the CER is based on an evaluation of the exhaustiveness of the data collection process, of the procedures implemented to ensure data quality, and of the level of research and surveillance activities that are carried out using the collected data, in line with legal regulations.

Data security and privacy

Data computerization, data security, validation process, together with database cross-checking, ensure the completeness and quality of the RNCE national data (French Data Protection Authority CNIL authorisation #998198 ).

In this context, and in accordance with the law of 6 August 2004 (on the protection of physical persons with regards to the automated processing of personal data) amending the prior legislation (law 78-17 of 6 January 1978) regarding information technology, data files and civil liberties, unless there is parental objection, information on the child’s disease is transferred to both the French National Registry of Childhood Haematological Malignancies and the French National Registry of Childhood Solid Tumours. Every person may directly contact the scientific coordinators of the registry to ask for any information, to have free access to his file or to require personal data correction.


UMRS1153 Equipe 7
Bâtiment 15/16
16 avenue Paul Vaillant Couturier
94807 Villejuif Cedex

+33 (0)1 45 59 50 37


Faculté de Médecine
BP 20199
9 avenue de la Forêt de Haye
54505 Vandoeuvre les Nancy Cedex

+33 (0)3 72 74 63 26