From the National Registry of Childhood Cancers, a Childhood Cancer Observational Platform (CCOP) has been established to promote research on paediatric cancers.
The platform is funded by INCa and is part of the HOPE-EPI project funded by ANR as part of the Future Investments Program (PIA).
It integrates several databases:
- The systematic tracking by the national cohort COHOPER, which allows for monitoring the health and quality of life evolution of individuals who have had cancer during childhood,
- From the National Registry of Childhood Cancers, a Childhood Cancer Observational Platform (CCOP) has been established to promote research on paediatric cancers. These pieces of information are enriched by data from the PediaRT radiotherapy database (led by Dr. V. Bernier-Chastagner).
- Research on environmental risk factors through geolocation with the GEOCAP program,
- The virtual biobank BIOCAP, linked to the registries, which is expected to ultimately enhance translational research in pediatric oncology.
The CCOP is carried out by the Inserm EPICEA team (Epidemiology of Childhood and Adolescent Cancers) within the CRESS (Research Centre in Epidemiology and Statistics) UMR1153.
The CCOP (HOPE-EPI project), like 10 other Investissements d’Avenir cohorts, has benefited since 2022 from the support of France Cohortes, established by Inserm to pool technical and human resources for the sustainability of ongoing cohorts.
